Película: Un milagro para Lorenzo./Film: A Miracle for Lorenzo.🎥😇

This film is based particularly on the struggle of parents to defeat the disease of their son Lorenzo Murphy Odone; the Adreno-Leuko-Dystrophy known as ALD, initially called Schindler's disease until then almost unknown by the medical community worldwide, which is only transmitted from mother to son and manifests itself in the first years of life of the latter. This is why Augusto and Michaela Odone dedicated their free time to study, while with the help of different nurses and Michaela's sister they took care of Lorenzo, as his disease progressed his parents had to look for more people to take care of him, since many did not want to do it, because the child suffered a lot and they thought that on the contrary they should let him die, since it is a disease considered as mortal, because at that time it was not known how to help children with this disease.

ALD is a genetic disorder of the brain caused by a buildup of fatty acids in nerve cells that damage the delicate lining of brain cells. The disease, which attacks the myelin sheath, mainly affects children, as it is caused by a defect in the X chromosome. According to the newspaper LA CAPITAL: https://www.lacapital.com.ar/informacion-general/murio-augusto-odone-quien-inspiro-el-filme-un-milagro-lorenzo-n421575.html

Los padres de Lorenzo no tenía ningún conocimiento médico, consultaron médicos y numerosas publicaciones. El y su esposa se dedicaron a estudiar, a leer sin descanso todos los artículos, publicaciones y libros con el fin de salvar la vida de su hijo así como también la vida de los miles de niños con el mismo problema. Encontró en un artículo que animales alimentados con aceite de oliva tenían niveles más bajos de ácidos grasos de cadena larga. El desarrolló una mezcla de aceites y se lo llevó a un científico, Hugo Moser, neurólogo del Instituto Kennedy Krieger en Baltimore, que estaba estudiando el ALD. Luego convencieron a un laboratorio que le prepara dicho aceite, y por su puesto pagaron una suma alta de dinero por el mismo tenían doble hipoteca de su casa. Lo mas bonito de la película que no solo se dedicaron en salvar la vida de su hijo sino por el contrario les dijeron a todos en la fundación, pero claro ellos estaban negados al inicio de que empleen dicho tratamiento para los demás, por su parte le dieron el aceite a un amigo muy cercano y ayudo a su mejoría ya que dicho niño no había perdido ninguna de sus facultades como sucedió con Lorenzo. Es tanto así que el tratamiento se indica a los pacientes al ser diagnosticada dicha enfermedad para evitar que avance, ya que sus avances suceden de manera rápida. El matrimonio Odone continuó dando a conocer la enfermedad y el aceite mediante el Proyecto Mielina (Myelin Project), que promueve y canaliza la investigación en torno a la ALD y otras enfermedades similares.

Lorenzo's parents had no medical knowledge, he consulted doctors and numerous publications. He and his wife dedicated themselves to study, to read tirelessly all the articles, publications and books in order to save their son's life as well as the lives of thousands of children with the same problem. He found in one article that animals fed olive oil had lower levels of long chain fatty acids. He developed a blend of oils and took it to a scientist, Hugo Moser, a neurologist at the Kennedy Krieger Institute in Baltimore, who was studying ALD. They then convinced a laboratory to prepare the oil for him, and of course they paid a large sum of money for it and had a double mortgage on their house. The most beautiful part of the movie is that they not only dedicated themselves to saving their son's life but on the contrary they told everyone in the foundation, but of course they were initially reluctant to use this treatment for others, on the other hand they gave the oil to a very close friend and helped his improvement since the child had not lost any of his faculties as happened with Lorenzo. It is so much so that the treatment is indicated to the patients when the disease is diagnosed in order to prevent it from progressing, since its advances happen in a fast way.
The Odone couple continued to raise awareness of the disease and the oil through the Myelin Project, which promotes and channels research on ALD and other similar diseases.